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Celine Dion describes the horror of singing with stiff person syndrome

Celine Dion describes the horror of singing with stiff person syndrome
Celine Dion describes the horror of singing with stiff person syndrome


Celine Dion is giving her fans a deeper insight into life with stiff person syndrome. In an excerpt from an interview with Today which will air Tuesday, Dion said that singing with stiff person syndrome feels like someone is strangling you.

Dion will share more details about what life is like with this rare and incurable disease in her highly anticipated documentary, I am: Celine Dion, released June 25 on Prime Video. She first revealed to the world that she had been diagnosed with stiff person syndrome with a Instagram post in December 2022, after which she canceled her world tour and withdrew from public life for further treatment. The condition is known to cause muscle stiffness and painful spasms that worsen over time.

In the Today In the clip, Dion pushes back her larynx with her fingers to show how the disease causes spasms and what her voice sounds like under pressure. It's like you're talking like this, and you can't go up or down. It becomes a spasm, she continued.

She also revealed that the spasms caused by the syndrome can have serious consequences. I had broken ribs at one point, because sometimes it's very bad, she said. The neurological disease has also made other things Dion enjoys very difficult. I love cooking, she said, but when she does, my fingers, my hands will get in a position where you can't unlock them.

Although she spent time away from the spotlight after her diagnosis was revealed, Dion made a surprise appearance earlier this year at the Grammys.

In the documentary's trailer, Dion says: “I have to admit it was a struggle to stop her singing career while the disease was taking its toll. I miss it so much. I miss the people. If I can't walk, I'll crawl. And I won't stop. I won't stop.

Full Today The interview will air June 11 on NBC.




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