Medical cannabis has only been prescribed to three children since it was legalized three years ago.
Families blame the lack of NHS funding and legal hurdles despite government promises to make it widely available.
They say the situation would be improved by removing a law that says cannabis grown here cannot be sold as medicine in the UK.
Hannah Deacon estimates the change could be worth $ 2 billion to the UK economy and create 97,000 jobs.
Her severely epileptic son Alfie Dingley, nine, became the first to get an NHS prescription from a specialist doctor for a cannabis drug three years ago.
But she still needs to get it in Amsterdam and only two other children have since received NHS orders.
Do you think medicinal cannabis should be prescribed? Join the debate in the comments
Another 100 families spend up to 2,000 a month on private doctors, while at least 1.4 million people illegally buy cannabis for diseases such as multiple sclerosis.
Hannah, 41, of Kenilworth, Warwicks, said: Her shameful doctors must advise patients to use the illegal black market because they can’t prescribe.
Last week, she wrote to Prime Minister Boris Johnson to request a meeting. His campaign group Maple Tree Consultants says Britain exports 97 tonnes of medicinal cannabis a year, 45% of the global market.
He wants reforms so that GPs and not just medical specialists can prescribe it, and growers can harvest leaves and flowers for use here, not just stems and seeds.
Maple Tree said: Companies are desperate to provide domestic patients.
Its proposals are supported by MPs and 14 industry organizations.
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