Connect with us

Health

Alberta launches newborn screening for spinal muscular atrophy through pilot project

Published

on

 


The Alberta government plans to begin screening newborns for rare genetic conditions next year as part of a pilot project funded by a national organization.

Spinal muscular atrophy (or SMA) adds to the 21 conditions in which babies are screened by the Alberta Neonatal Metabolism Screening Program. Alberta Precision Laboratories staff will test blood samples taken by piercing the heel of a newborn baby.

Treating SMA before the child begins to show symptoms greatly increases the chances of the child surviving.

“Before newborn screening and treatment, SMA-born babies couldn’t reach their second birthday,” said Muscular Dystrophy Canada, CEO of Muscular Dystrophy Canada, which is funding a $ 366,000 one-year pilot project. One Stacey Lintern said.

“The evidence is clear. The earlier the diagnosis, the greater the opportunities, choices, treatments, and supportive care.”

This news was welcomed by Jessica Janzen Olstad of Calgary. His son Lewiston died in this condition in November 2016, just before he was six months old.

Lewiston did not show symptoms until he was two months old. At that time, his doctor noticed that Lewiston had little muscle tone and had breathing problems, Janssen Olstad said.

She and her husband had few options before they were diagnosed, she said.

“There was no hope, no cure, no cure,” she said in tears. “It seemed impossible to access clinical trials. They took Lewiston less than a year.

“We prayed for a miracle, but sadly the story wasn’t written as we wanted.”

Janzen Olstad turned her grief to ensuring that other families did not have to experience the same devastation.

She founded the Love for Lewiston Foundation to screen, treat, and ultimately advocate treatments for SMA. The Foundation, in collaboration with Alberta Children’s Hospital, funded SMA’s newborn screening study in 2019. The initiative was led by Dr. Jean-Mah, a pediatric neurologist who is a Lewiston physician.

Alberta, Manitoba and Quebec have announced that they will begin SMA screening on Wednesday, Lintern said. Muscular Dystrophy Canada is also discussing the launch of screening programs with other states, such as British Columbia and Saskatchewan.

“We won’t stop until all babies in Canada have been screened until the SMA’s newborn screening is complete,” she said.

The Alberta Government will continue screening for SMA after the completion of the one-year pilot program.

In January, Alberta began provisional funding for Zolgensma, a $ 3 million gene therapy treatment per dose.

Sources

1/ https://Google.com/

2/ https://www.cbc.ca/news/canada/edmonton/alberta-screening-babies-spinal-muscular-atrophy-1.6111915

The mention sources can contact us to remove/changing this article

What Are The Main Benefits Of Comparing Car Insurance Quotes Online

LOS ANGELES, CA / ACCESSWIRE / June 24, 2020, / Compare-autoinsurance.Org has launched a new blog post that presents the main benefits of comparing multiple car insurance quotes. For more info and free online quotes, please visit https://compare-autoinsurance.Org/the-advantages-of-comparing-prices-with-car-insurance-quotes-online/ The modern society has numerous technological advantages. One important advantage is the speed at which information is sent and received. With the help of the internet, the shopping habits of many persons have drastically changed. The car insurance industry hasn't remained untouched by these changes. On the internet, drivers can compare insurance prices and find out which sellers have the best offers. View photos The advantages of comparing online car insurance quotes are the following: Online quotes can be obtained from anywhere and at any time. Unlike physical insurance agencies, websites don't have a specific schedule and they are available at any time. Drivers that have busy working schedules, can compare quotes from anywhere and at any time, even at midnight. Multiple choices. Almost all insurance providers, no matter if they are well-known brands or just local insurers, have an online presence. Online quotes will allow policyholders the chance to discover multiple insurance companies and check their prices. Drivers are no longer required to get quotes from just a few known insurance companies. Also, local and regional insurers can provide lower insurance rates for the same services. Accurate insurance estimates. Online quotes can only be accurate if the customers provide accurate and real info about their car models and driving history. Lying about past driving incidents can make the price estimates to be lower, but when dealing with an insurance company lying to them is useless. Usually, insurance companies will do research about a potential customer before granting him coverage. Online quotes can be sorted easily. Although drivers are recommended to not choose a policy just based on its price, drivers can easily sort quotes by insurance price. Using brokerage websites will allow drivers to get quotes from multiple insurers, thus making the comparison faster and easier. For additional info, money-saving tips, and free car insurance quotes, visit https://compare-autoinsurance.Org/ Compare-autoinsurance.Org is an online provider of life, home, health, and auto insurance quotes. This website is unique because it does not simply stick to one kind of insurance provider, but brings the clients the best deals from many different online insurance carriers. In this way, clients have access to offers from multiple carriers all in one place: this website. On this site, customers have access to quotes for insurance plans from various agencies, such as local or nationwide agencies, brand names insurance companies, etc. "Online quotes can easily help drivers obtain better car insurance deals. All they have to do is to complete an online form with accurate and real info, then compare prices", said Russell Rabichev, Marketing Director of Internet Marketing Company. CONTACT: Company Name: Internet Marketing CompanyPerson for contact Name: Gurgu CPhone Number: (818) 359-3898Email: [email protected]: https://compare-autoinsurance.Org/ SOURCE: Compare-autoinsurance.Org View source version on accesswire.Com:https://www.Accesswire.Com/595055/What-Are-The-Main-Benefits-Of-Comparing-Car-Insurance-Quotes-Online View photos

ExBUlletin

to request, modification Contact us at Here or [email protected]