Is there anything about living with a chronic illness? : NPR

People walk along the main street of Brighton Beach in Brooklyn on Thursday in New York City.

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People walk along the main street of Brighton Beach in Brooklyn on Thursday in New York City.

Spencer Pratt / Getty Images

In some people, COVID-19 symptoms can persist for months after a negative coronavirus test and after recovery from the worst illness. The National Institutes of Health calls these long-term symptoms as follows: Acute sequelae of SARS-CoV-2, Or PASC. More generally, it is post-COVID syndrome, or simply “Long COVID.. ”

People with this syndrome are known as “long-distance carriers.” Neurological problems such as organ damage, lung and heart problems, and brain fog and malaise can occur. This means that thousands of previously healthy people are now living in chronic conditions.

If you are a COVID-19 “long haul carrier” or know someone, please fill out the form below. I would like to ask you questions about the practical everyday reality of managing chronic illness. In addition, if you are already living with a chronic illness, long COVID, or other illness, we would like to hear your tips and advice for those unfamiliar with this.

We are looking for someone to share their questions with, and we may contact you for future talks. We will not publish or use your answer before contacting you.

Your submission will be managed by our general terms of service When privacy policy.. Please note that the exemptions provided under the Act on Journalism Activities or Freedom of Expression, as stated in the Privacy Policy, may revoke the right to privacy that may otherwise be held. please. ”

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