Most of us have been stuck at home for almost two months. As one of the millions of debilitating Americans Chronic illness, I’ve been stuck at home for the last 10 years.
There is a symptom called ME /CFS.. Since my diagnosis, I had to drop out of class in advance, limit visits from friends, and give up hope for my family. And I’m one of the lucky ones. I can work from home and take a few walks around the dead end several times a week. I have a supportive husband.
There are others in my condition who are completely tied up in bed. YouTube has a video of a girl named Jessica who has been sitting for the first time in seven years. Some people may find the video exciting. To me, it’s scary. If my condition deteriorates, it could be my existence.
In a sense, I sympathize with the protesters who protest the gloomy reality of being isolated at home. I have lived in the same frustrating beings that have propelled them to protest in the last few decades.
But I know they don’t know. There are actually two things. First, I know their behavior is spreading the virus. And second, we know how much more a virus can destroy a person’s life than most of the time, even if the virus survives.
My ME / CFS was caused by a virus infection. And I’m not the only one. Epstein-Barr, Coxsackie B, and SARS are all viruses associated with ME / CFS cases. Most destructive of all, experts predict the present COVID-19 (New Coronavirus Infection) (# If there is no character limit, add parentheses when first appearing A pandemic could double the volume of ME / CFS cases here in the US. actually, COVID-19 Almost 35% of survivors Already showing neurological symptoms like me.
In other words, many who survived COVID-19 may never be able to stay healthy again, and their home order will continue long after the rest of the Americans return to normal life.
Millions of us are missing—from the workforce, from ballot boxes, summer barbecues and wedding photos. We are missing and are often forgotten over time. This is especially true when it comes to funding research.
I am fortunate to be a patient at Stanford’s Infectious Disease Clinic at the cutting edge of MECFS processing. But my doctor often talks about how difficult it is to finance his research proposals.
“You don’t die,” he says. “And, unless people are dead, they don’t think they’re serious enough to raise money.”
Maybe it will change after this pandemic. Maybe the public will realize that their existence may never die, but it certainly isn’t alive. Perhaps the NIH and CDC will find that the research needs more money.
So I went to Congress with other ME / CFS defenders Allocate $ 60 million to fund post-virus research as part of the next COVID-19 package.. That funding is needed to help health professionals at the forefront of their ability to identify and treat postviral diseases like me, and to better understand the illness that continues to destroy many COVID-19 survivors. Providing funds to researchers.
It may give us the opportunity for us to finally leave the house.
For more information on coronaviruses, check out the following stories from our community:
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