New research may help assess symptoms

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• Long COVIDs are associated with a variety of symptoms that continue to confuse scientists.
• Together with people who have had long COVID experiences, researchers have created a questionnaire to better define the condition.
• Questionnaires, combined with other data, provide physicians with a longer, more practical understanding of COVID.

“Long COVID” is a familiar term and a phenomenon of concern, but the state is still unknown. Long COVID, also known as post-COVID-19 syndrome, includes protracted symptoms of COVID-19 and symptoms that appear after an acute or active infection stage of COVID-19. It can contain any number of organs.

Researchers at the Center for Patient Reporting Outcomes Research at the University of Birmingham, UK, have now developed and validated a comprehensive questionnaire designed to help identify the definition of long COVID.

Dr. Jai G. MalateAn infectious disease expert at the Boston Medical Center in Massachusetts explained the problem as follows: Today’s medical news:

“Long COVID is a condition in which clinicians are learning with patients, and in many cases we are learning. from Patience. With over 50 reported symptoms, post-COVID conditions can vary from person to person and are often difficult for both the patient and the medical community to recognize. “

“Now,” said Dr. Malate. 30% Many COVID survivors can experience long COVIDs, and the number of presentations that different patients can present is staggering. In addition, the intensity of symptoms can range from very mild, with minimal impact on daily life, to severe disability. “

“Think about [long COVID] As an answer to the feared question, “Are you there anymore?” On a running train with an unknown departure station and destination. It’s a big mystery. “
-Dr. Jai G. Malate

A study explaining the creation of Symptom burden questionnaire Long COVID, or SBQ-LC, the bmj..

The lead author of the survey and survey is Dr. Sarah Hughes, Researcher at the University of Birmingham.She motivates the team MNT:

“We know that long COVIDs cover a wide range of, often fluctuating symptoms that can appear at any time after the initial COVID-19 infection. This allows COVIDs to actually be as long as they are. It becomes difficult to know if there is, and therefore what needs to be measured. “

“Obviously, individuals living on long COVIDs have told us that existing measures do not fully capture their living experience.”
— Dr. Sarah Hughes

To gain a more useful understanding, researchers saidOutcome indicators reported by patients, “Or PROM. Anyone who has been infected with COVID-19 can complete it on their own or in an interview.

From these interviews and literature reviews, researchers have identified a series of long COVID symptoms. They presented the results to 10 clinicians who examined and identified the symptoms of clinical concern. Next, we field-tested the draft questionnaire to 274 adults with long COVIDs.

Dr. Hughes further explained:

“When deciding” what to measure “with long COVID, our decision is a symptom of the current understanding of long COVID from published literature, a symptom of clinical concern from the perspective of healthcare professionals and researchers. It was based on the identification of, but most importantly, the symptoms experienced by people with long COVIDs. “

Researchers have broadly collaborated with individuals who have experience at each stage of SBQ-LC development to address all symptoms of long COVID where the item (question) is considered important to the individual living in that condition. I tried to represent it, “she said.

At this point, it is not possible to know if the long COVID is a single disease or if it contains multiple states combined only by its origin with COVID-19.

“It is definitely worth exploring long COVIDs as a single condition. In clinical practice, clinically as needed by grouping together symptoms that may be temporarily associated with COVID-19. It facilitates the identification and diagnosis of patients who will benefit from evaluation and management, “says Dr. Marathe.

“I see a long COVID study as the starting point for a more detailed study that follows,” she added.

The direct results of SBQ-LC are another study Treatment of Long COVID (TLC) in non-hospitalized individuals UK funding NIHR When UKRI.. SBQ-LC data is combined with data from other “PROMs” (delivered via the digital platform developed by). Aparito Ltd.. ), Wearable data, and blood and other biological tests characterize the long COVID syndrome and immunologically determine its phenotype, “says Dr. Hughes.

“We hope,” said Dr. Hughes.[the SBQ-LC] It will be widely adopted as part of a long COVID core outcome set to enable comparative global data. “

Still many unknowns

Experts do not yet know how long it will take to stop the onset of COVID symptoms after an acute infection, ensuring that they have sufficient data to fully cover all aspects of the condition. The question arises as to whether it can be obtained.

“I think this is a very difficult question to answer, because I don’t know who could develop a long COVID. New variants have influenced the development of long COVIDs. And how long does it take for each patient to resolve their post-COVID condition? “Dr. Malate said.

She pointed out that this kind of uncertainty had been experienced before and made a long-term quote. Framingham Heart Study:

“As our understanding Heart disease As it grew, research results were no longer called preliminary. I think the same thing will happen with long COVID data. “

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