Health
A manuscript has been published to improve the relationship between cancer scientists and patient advocates
Houston, June 30, 2022 / PRNewswire /- Teresa Research Foundation I am excited to publish a new manuscript titled “”.Improve odds together: A framework for breast cancer researchers to include patient advocates in their studies“Released today npj chest..
While awareness of the value of including the voice of patient advocates in cancer research has increased in recent years, basic research scientists are often uncertain about how to establish or maintain relationships with advocates. The manuscript explains these barriers and provides potential solutions, including short-term and long-term goals to overcome these challenges.
“When scientists partner with patient supporters, the actual experience of people living with cancer informs the work at every stage, rather than thinking later. Patients are the scientist’s greatest champion. No one wants their work to be as successful as we are. Our lives literally depend on it!“” Julia Maues, patient advocate and co-founder of GRASP, commented.
“”Having worked with patient supporters for many years, I am very passionate about how patients can influence their research and how much they can teach each other how to make progress towards cancer. I have“ Said Alan WelmPhD, Professor and Senior Director of Basic Sciences, Huntsman Cancer Institute University of Utah..
In the summer of 2021, Teresa’s Research Foundation hosted a virtual roundtable to identify opportunities to improve the relationship between researchers and supporters, and then published the findings over the next eight years.th The annual Metastatic Breast Cancer Research Conference to be held in the fall of 2021. The meeting included patient advocates and research scientists who provided additional feedback. The findings from these discussions have been summarized in a manuscript co-authored by researchers and supporters.
“Many of our group of research scientists working with supporters have taken a more patient-centric approach that helps them focus on their research and improve their communication skills. We hope that basic research scientists are encouraged to work with patients. We advocate improving cancer research and patient outcomes. ” Hillary StylesPhD, Science Policy Analyst at Friends of Cancer Research.
About Teresa’s Research Foundation
The mission of the Teresa Research Foundation is to provide better treatment options, improve patients’ quality of life, and specifically fund research into metastatic breast cancer that will eventually cure. Each year, the organization hosts the Metastatic Breast Cancer Research Conference, which is co-sponsored by Lester and the Sue Smith Breast Cancer Center. Baylor College of Medicine The University of Utah’s Huntsman Cancer Institute aims to create a collaborative research environment with a diverse audience with the long-term goal of developing a therapeutic approach to metastatic breast cancer. To register for the 2022 event, visit the following website: https://na.eventscloud.com/ehome/index.php?eventid=676621&.. For more information on the activities of the Teresa Research Foundation, please visit: http://www.theresasresearch.org..
Contact: Josh Newby
(618) 580-0908, [email protected]
Source Teresa Research Foundation
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