Health
US health officials aim to ‘transform’ Alzheimer’s research with $300 million data platform
CNN
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The National Institute on Aging is working to build a real-world Alzheimer’s disease database as part of its goal to improve, support and conduct more dementia research.
Last month, the agency, part of the National Institutes of Health, Notice of subsidies has been published For a six-year database project, set the earliest start date to April 2024.
The NIH confirmed Tuesday that plans are underway to fund a real-world data platform for Alzheimer’s and Alzheimer’s-related dementia.
The National Institute on Aging will commit $50 million annually to fund one award, beginning in fiscal year 2024.
The Alzheimer’s Association, a non-profit organization, is among those planning to apply for grants.
“NIA funding for the newly announced large-scale Alzheimer’s disease research database is truly exciting and a very important step forward for our field. The Alzheimer’s Association will apply for that grant.” said Maria C. Carrillo, chief scientific officer of the Alzheimer’s Association, in an email Tuesday.
“The association is already leading ALZ netThis is a national network of physicians collecting data (including measures of cognition, function and safety) on patients receiving new FDA-approved Alzheimer’s treatments,” Carrillo said. “NIA funding could expand the reach of ALZ-NET and benefit all stakeholders.”
She added that the Alzheimer’s Association believes everyone should have access to treatment regardless of their registration status.
The real-world database “aims to transform” the Alzheimer’s disease research enterprise “by acting as a central hub for research access.” The National Institute on Aging said Last week, we announced a webinar on the project scheduled for April 19th.
The purpose of the data registry, according to the announcement, is to provide a comprehensive and diverse database that can “increase the applicability and generalizability of findings” and to be used as a tool for researchers to address scientific questions. to be resolved more quickly.
Last year, the National Institute on Aging convened an exploratory workshop to discuss real-world data gaps and opportunities to expand real-world data sources for dementia research.
Alzheimer’s disease, Brain disorders that affect memory and thinkingis the most common type of dementia, says the NIH.
More than 6 million Americans have dementia due to Alzheimer’s disease, and that number is expected to double over the next 20 years to reach 13 million by 2050, according to the Alzheimer’s Association.
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