Health
Researchers say more support and education is needed to help B.C.'s COVID-19 patients
Better Long-lasting new coronavirus Patients need awareness, education and support, according to researchers at Simon Fraser University who conducted a study on the topic.
Further education for health care workers, including doctors and nurses, is one of the recommendations in a report conducted by the SFU-based Pacific Institute for Pathogens, Pandemics and Society.
The report includes two focus groups consisting of unpaid caregivers, professional care providers, long-term coronavirus disease researchers, and people living with long-term coronavirus disease identified as “long-term residents.” Contains research results from
“This is a new symptom that you can't see,” said long-hauler Kayley Jamison, who co-led a focus group as part of a larger study with SFU School of Health Sciences assistant professor Kayley Byers. “Many people do not believe that long-lasting COVID-19 is real or exists. Unfortunately, it permeates throughout the health care system.”
According to researchers, long-term COVID-19 is a multisystemic condition that begins weeks after infection with COVID-19 and can last for years.
People who have lived with COVID-19 for a long time often need to take time off from work to rest and manage their symptoms.
More than 3.5 million Canadian adults have experienced prolonged COVID-19 symptoms, and 40 per cent of them said they had difficulty accessing health care, according to Statistics Canada.
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Researchers said that despite hundreds of studies on the long-running coronavirus, there is no approved standard treatment or cure.
“We want to be visible, but we are becoming increasingly invisible.” As one unpaid carer who took part in our study put it: “We want people to believe that coronavirus will be around for a long time. “I think there needs to be a cultural change in that we have a lot of people in our lives,” Jamieson said.
Jamison contracted COVID-19 in 2021 and has been battling symptoms of the disease for a long time ever since.
At the time, she was a master's student and was working two jobs. Due to the symptoms, she had to take her medical leave.
“This is a dramatic change,” she said. “Cognitive impairment…I couldn't even understand when I was reading my previous work, and I couldn't move due to fatigue.'' You may end up bedridden due to fatigue afterwards.”
Jamison's symptoms included brain fog and fatigue, as well as a rash, ringing in the ears, chest pain, shortness of breath and tremors.
The report concluded that further investment in public health is needed to find evidence-based pathways to care.
“As the pandemic continues, the lingering effects of COVID-19 need to be addressed urgently at all organizational levels, especially given its potential to become a 'mass-disrupting event' with socio-economic consequences,” the report said. The book says:
“Significant financial investment is required to generate research that provides support, provides accessible information and facilitates patient rehabilitation.”
© 2024 Global News, a division of Corus Entertainment Inc.
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