Health
Pennsylvania mother works to destigmatize and raise awareness of psoriasis
People living with the common skin disease psoriasis often feel isolated and embarrassed, according to new research. Doctors and patients now want: raise awareness and remove the stigma.
Doctors say psoriasis is not contagious, but many people mistakenly think it is. And it's not just your skin that is affected.
Kelly Amerin has psoriatic arthritis, which causes joint pain.
“I had to stop working several times because my symptoms kept coming on and I couldn't use my hands anymore,” Amerin said.
She also suffers from severe knee pain, which interferes with family activities such as hiking and skiing.
“My biggest fear is that I will lose my mobility and that life will go on without me and I will no longer be a part of it,” Amerin said.
The Westchester mother says it started with psoriasis. Psoriasis is a related chronic skin disease that causes scaly white patches.
“No one wants to touch your hand,” she said. “And it hurts. It hurts.”
new research from National Psoriasis Foundation They found widespread social stigma surrounding the condition.
Penn Medicine dermatologist Dr. Joel Gelfand said psoriasis is not contagious, but people with the condition are often shunned.
“About a third of the people surveyed in this study felt that psoriasis was probably contagious, that they didn't want this person to marry into their family, that they didn't want to shake hands with people,” Gelfand said. spoke.
“One in three people will look at you with disgust or rejection,” Gelfand says. “And that's very difficult for people living with this disease.”
Ameline said her symptoms are now under control with medication, but when the spots became more noticeable, she noticed people keeping their distance.
“It's unfortunate that there isn't more awareness of psoriasis in the public,” she said.
Ameline is working to spread the word that psoriasis is nothing to fear.
A new study estimates that approximately 600,000 adults in the United States have undiagnosed psoriasis, which can be effectively treated.
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