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Young families are facing financial ruin trying to protect their babies from Covid-19.Coronavirus

 


Jessica Rusk and Dylan Garcia are under what they call “unbearable stress.”

Every second they are worried about keeping their youngest child safe Pandemic, They may lose their home and hurt other children. And that may not be enough yet.

“Is it better to stay home, or will she put us in a more endangered homeless shelter?” Garcia said of his three-year-old Brandy.

Fear is nothing new to young couples, as Brandy requires 24-hour care and has a very rare metabolic disorder that makes him vulnerable to all types of viruses.

She is already a walking miracle. Most children in her condition are not alive after the age of one.

However, the pandemic made it even more difficult to keep her alive. Garcia and Rusk quit their jobs in April and are at home to take care of their children and reduce the chances of the coronavirus invading their home.

They are now in debt of thousands of dollars and are facing evictions at the end of the month.

Brandy’s parents seem to be so many with vulnerable families who have made huge sacrifices to protect them for months and months-and see more for weeks as Covid-19 continues to spread. I am.

But it’s hard to explain to Brandy’s brother and sister who can’t safely go to school or even be around other children. A young friend hangs on the railing of the apartment patio and calls on Isabella (5 years old) and Elijah (6 years old) to come out to the playground next door. But that’s too risky.

“We’re trying to explain it to them. They’re like,’Oh, good today. I didn’t do anything wrong,'” Garcia said. It’s as if you didn’t do anything wrong. It’s just … you can’t go out. “

Brandy suffers from carnitine-acylcarnitine translocase (CACT) deficiency. This is a serious condition in which her body cannot use certain types of fat as an energy source. She has to be nourished through a tube in her stomach every few hours, and she is on a long list of expensive medicines.

Her body has little reserve to fight the virus.

Dr. Luis Umagna, a pediatric genetics and metabolism specialist at Children’s Health in Dallas and an assistant professor at UT Southwestern, said:

Brandy’s doctor, Umagna, said: “For others, she’s vaccinated now. There’s no coronavirus vaccine yet-at least it’s available.”

According to Umagna, less than 1 in 250,000 babies are born with CACT deficiency, and treatment requires “overwhelming effort” even in normal times. “She will never really get out of the forest,” he said. “At any time in her life something can go wrong and that can be it for her.”

Umagna observed that families like Brandy were in a “non-winning situation” during the pandemic. “They will have to take risks (of working) or can’t afford to buy their basic needs.”

And Umagna believes that Brandy can benefit Coronavirus vaccine Rusk and Garcia, who are currently seeking approval, are hesitant to commit until they see how children with similar needs will be affected.

Days until Christmas … and eviction

Garcia quit her factory job in April, and Rusk quit her home care job at about the same time. The family gets a monthly unemployment allowance of $ 414 and food stamps of $ 305. Medicaid supports most of Brandy’s medications and treatments, as well as home care payments, up to 16 hours a day.

The family says the rent is about nine months late and the utility bill is $ 2,000 late. The only reason their lights are still on is because Brandy has a medical condition that requires electricity to power her feeding pump. “I sold everything in the house to make money, to pay one bill, to pay a partial bill, to do whatever we can,” Rusk said. Said.

The young couple is clearly suffering when they say their children are asking about Christmas. But they are only focusing on another day in December, the last day they say they are worried about losing their home.

“We don’t even think about Christmas gifts,” Garcia said. “We are thinking about where to stay”

“They aren’t going to have Christmas,” Rusk added, of course. “They have nothing.”

In Dallas County, like other major cities in Texas, Covid-19 cases have increased dramatically in the past month. The couple said they were looking for a job that they could do at home, but lacked it because they had no formal education.

With no family to support them financially or physically, the worst fears of Garcia and Rusk need to be evacuated, moved to homeless shelters and sent back to hospitals where Brandy can be treated. When Brandy was first born, her parents lived in the hospital with her for two months and could hardly see the other two children.

“The last thing I want is to have to start over,” Garcia said.

“Or you can’t see her and you’re in a casket,” the mother added.

The couple said they took it only one day at a time and hoped the virus would “disappear.”

“The only hope we got is the fact that we still have her. She’s still here,” Garcia said. “We are still with her.”

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