A mother who has traveled 4,000 miles to marry her soulmate is facing a battle against time to raise £ 50,000 to save her life.
Her husband, Aid, who was told by her doctor that she could only live for a month in December, is determined not to give up immediately.
Wife Terra Newman based in Ade and Worcestershire, Sharing her story.
Ade, a 49-year-old electrician, came back from work one night in June 2020 and had a hard time writing.
His symptoms got worseA few weeks later, he culminated in a drag on his slurred speech.
The pair was called the NHS111 line and he was rushed by ambulance to the Department of Neurology at the Royal Hospital of Worcestershire. A brain tumor was detected there.
Forty-five-year-old Terra said:
“For some reason, he was perfectly healthy and was cycling everywhere. Next he was told this.”
Ade, Terra and their children Cove (12 years old) and Ever (8 years old) remained hopeful, but a September 7 test showed that he had a rare brain tumor (primary non-Hodgkin’s lymphoma). It became clear that he was suffering. ..
From there, he completed a cycle of chemotherapy at Worcestershire Royal, but the second round in September was shortened due to fever.
By October, he managed to complete a complete 21-day cycle, and the couple felt positive.
But tragically, at the beginning of November, they found that the tumor had returned – measuring a full 4 cm.
Another round of chemotherapy that month was ineffective, leading to tragic news that there was nothing more NHS could do at the beginning of December.
The doctor told Ade that he had only one month left to live.
Terra, who works in social media marketing, refused to give up and immediately began raising funds and looking for alternative treatments.
Through cycling, walking and community events, she helped raise more than £ 20,000 towards her minimum goal of £ 50,000. GoFundMe page – We want to fund immunotherapeutic drugs and personally fund pioneers in radiation and laser beam therapy.
Originally from Florida, USA, where she met Ade when she worked for a short time in 2005, she said:
“I knew there was a cure even if I couldn’t get treatment with the NHS.”
She continued: “My approach is’I’m going to find something’.
“I’m the performer. If that doesn’t work, I’ve at least tried it. At least I’ve provided everything possible.
“We need to give our children a few more years with their father.”
When Ade returned to Worcester, he was completely devoted since he met in Florida. He and Terra enjoyed a long phone call across the Atlantic for 10 months before taking the plunge to move to the West Midlands in March 2006 to join him.
A few months later, in August, when I tied the knot and the two kids completed the family, I loved the long bike ride and active lifestyle in the countryside, despite living in the town.
“He’s a great cyclist and very practical,” Terra said.
She added: “At this point, kids are really missing out on biking and adventure.”
It was Aid’s best fitness that dismissed his early symptoms as “trapped nerves”, such as being difficult to write.
Terra continued. “Within a few days after this happened, we noticed that he was beginning to lose the use of a few fingers.”
“We called the GP because it started to worry us, but when he had a cramp while driving, he went to A & E, where they X-rayed his neck and what I didn’t know if it was bad, “Tera said.
“At that point, no one suspected it could be his brain.”
After the tumor was finally detected, he removed the tumor in August at Coventry University Hospital with a 10-hour operation, but examinations only a month later revealed that the tumor had recovered. I did.
Terra said Ade was “by herself” and “distracted” in the news.
She states: “At the end of November, his consultant said there was nothing he could do other than give him palliative radiation therapy. They would send him home and essentially die.
“I wasn’t going to accept it. I felt complete distrust and anger at this cruel illness.”
“We didn’t mean to give up on a healthy 48-year-old man and his two fathers,” she added.
“It wasn’t accepted by me.”
So Terra made it her mission to find other options – she decided to save her beloved husband.
She used her social media skills to track CNS lymphoma specialists and other patients around the world and discovered the immunotherapies ibrutinib and lenalidomide, proton beam or cyberknife radiation therapy. Use a laser focused beam to suppress growth. brain.
Terra, personally available in the UK and offered to young NHS patients, says there is evidence that treatment can save lives, but the NHS is staggering for Abe to be treated. She raises for £ 40 to not cover the cost-50,000 people have to pay for themselves.
She said: “We started this GoFundMe I knew that part of this page would have to be paid for by myself. ”
“I knew there was no way I could give him only 30 days,” she said.
“It’s not fair to have him taken away so quickly.”
Currently, the family is determined to raise enough funds for Aid to receive Cyberknife radiation therapy or proton therapy sometime this year in the UK, costing at least £ 40,000.
The plan is that this will make him healthy enough to participate in trials of specialized cell therapy known as CAR T cell therapy. The experiment was conducted at a hospital in London this year and is funded by a US pharmaceutical company. Conviction offers the best chance of his survival.
According to the Cancer Charitable Lymphoma Action, CAR T cell therapy involves the removal and genetic modification of immune cells from the patient.
This allows you to “recognize and kill lymphoma cells that are not detected by immune cells.”
Terra said: “Unfortunately, this type of cancer tends to recur, so we need to think about what we can do to extend the life of Ade.
“CAR-T cell therapy requires a 6-8 week stay in a sterile room, which is very burdensome to the body, but has a very high survival rate.
“But taking him there is a fierce competition with time.”
He is currently on regular radiation therapy and is taking the immunotherapeutic drug ibrutinib, but sadly, his family is taking the drug as part of a 90-day limited-time compassionate drug trial. Therefore, it is said that Ade’s prescription will not last indefinitely.
Still, Terra firmly believes that something is going well because her husband was able to spend Christmas at home, despite being partially handicapped and unable to use his right hand.
“I don’t know how long it will last, but something is working,” Terra insisted.
“He can walk and hopefully one day he can ride a bike with his kids. We are looking for a bike with one hand,” she continued.
“I hope he can be used as an example of how these treatments work.
“You don’t have to choose whether they live or die based on how much they can afford.”
Despite losing her mother to Ade’s illness, Covid-19’s pandemic, and heart surgery complications on her September birthday, Terra refused to lose hope.
She said. “My children are a great source of power.
“I was completely honest with them from the beginning.”
“When I got the news, I talked to them right away, but they always had hope because they said,’Mom is trying to find something,'” she explained.
“They know it’s serious, but they also know that we’re really working hard to raise money.
“My son said to me,’I’m not worried until you tell me you should.'”
She added: “They know that I act frankly and I don’t protect anything from them.”
Previous fundraising events have included family walks to Birmingham, Ade’s best friends cycling to France on exercise bikes, and Cove and Ever’s friends on sponsored bikes and 15km hikes.
“It’s great to have this real community around us,” Terra said.
“The number of people who donated-a complete stranger who doesn’t know us at all,” she said.
“I had a neighbor who had never asked if I could knock on the door and bring food.
“It’s a terrible time to ask people for money. It’s just Christmas, there’s a coronavirus, and people are having a hard time taking a break from work.”
“Of course, we welcome larger donations, but only a small donation of £ 5 is added together and suddenly makes a real difference,” she concludes.
“All the little pennies are, I am very grateful.
“I have to think that 2021 should be a better year.”
Meanwhile, Ade, who was told by a doctor that he had only one month to live in December, is determined not to give up immediately.
He states: “I was devastated and shocked when I learned from a consultant that my cancer was incurable and they could only live me for a month.
“I’m a healthy 48 year old man and I have no other health problems. I have two young children at home, is there anything I can do more?”
He continued. “I couldn’t think of leaving my family behind in such a short amount of time.
“Thankfully, my wife did her research and found other treatments for me. Some of them are not funded by the NHS, so we spend more time It is very important to raise as much money as possible to give.
“I am very grateful for the kindness of strangers.”
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