Health
Cystic Fibrosis Automatically Disqualifies Children for Make-a-Wish Foundation
CNN
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The Make-A-Wish Foundation has announced that it is no longer automatically eligible because its cystic fibrosis results have made “life-changing progress.”
The Charitable Foundation Announces Policy Changes in Friday’s news release. They explained that from January 2024, children with cystic fibrosis will only be eligible if they have “additional complications or factors that make their current situation critical.”
Cystic fibrosis isa Lifelong disease Progressive genetic diseaseTreatment options for this disease have long been limited, and diagnosis is associated with a shortened lifespan.
However, advances in the treatment of this disease have extended lifespans for cystic fibrosis patients by decades. From 2017 to 2021, the current life expectancy for cystic fibrosis patients born between 2017 and 2021 is 53, up from her 38 a decade ago, according to the release. And in 2019, FDA approves ‘breakthrough’ treatment It can be used by up to 90% of patients with this disease.
“This decision was not made lightly and we understand that it may result in frustration and disappointment,” the organization wrote. We will carefully consider CF requests that guardians, medical professionals, or potential wish children believe meet our guidelines.”
The foundation said it will consult with a team of 19 doctors from diverse backgrounds and some of the more than 200 medical advisors who support chapters to ensure the new rules are applied fairly.
The non-profit explained that it would also grant wishes on a case-by-case basis for several other ailments, including some cancers, epilepsy, sickle cell disease, and heart disease.
According to its website, the Make-A-Wish Foundation gives “life-changing wishes” to children aged 2.5 to 18 who have been diagnosed with a serious illness that “endangers a child’s life.” .
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Sources 2/ https://www.cnn.com/2023/03/19/us/cystic-fibrosis-make-a-wish-trnd/index.html The mention sources can contact us to remove/changing this article |
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