Health
Researchers call for federal plan to improve long-term Covid-19 patient care
Cleveland, Ohio — 15 Leaders in Long-Term Studies of COVID-19 We are uniting in Cleveland and across the country to lobby governments to help improve the lives of patients suffering from chronic diseases.
Each of the scientists is leading an independent trial known as a research collaboration funded by the National Institutes of Health. recoveryworking directly with patients with long-term COVID-19.
Dr. Grace McCosey of University Hospitals is leading the RECOVER trial in Cleveland.
McComsey said the current initiative is the result of frustration on the part of researchers over the slow pace of the RECOVER study.
Over the past year and a half, researchers have collected data from more than 15,000 patients, but so far no treatments have been tested on patients. Initially, clinical trials were scheduled to begin in February, but have now been postponed until the summer.
This has prompted researchers to pursue their own independent research in addition to the work they do for RECOVER. These studies are being published at a much faster pace, McComsey said, with researchers testing potential treatments in clinics. and have not collaborated to share the results of these studies with the general public or other physicians.
“We can’t just wait for RECOVER. We feel a sense of urgency that others don’t,” McComsey said. is limited.”
- Related: Got COVID? His RECOVER study in Cleveland wants you – cleveland.com
- Related: In Cleveland and Beyond, Researchers Begin to Solve the Long COVID-19 Mystery – cleveland.com
Together, the researchers announced call to action In it, they are asking Congress for $37.5 million to fund these activities.
Researchers say a medical infrastructure needs to be built to provide better care for these patients, and the RECOVER study’s network of research centers is ready to do just that. They simply need the funding and support of the networks they have already built to share what they have learned with each other and turn their individual observations into practices that can be used to educate other doctors.
McCombie said The feedback they are getting from their patients is that doctors still frequently downplay their symptoms.
“Many clinicians still don’t realize how long COVID-19 is,” said McComsey. One of her goals, she said, is to teach them.
The group is proposing to designate the current RECOVER trial site as a Center of Excellence for the prolongation of COVID-19.
- Support patients by coordinating clinical care and rehabilitation, closing healthcare gaps, and addressing ongoing and complex medical and psychosocial needs.
- focus on Patients currently fragmented or receiving no care.
- Define, continuously improve and implement standards and best practices of care through coordinated information exchange.
- Expand access to quality care and further reduce inequalities by disseminating information and providing support to educate providers, patients and communities.
- Develop and implement a workforce training program for healthcare providers caring for long-term COVID patients.
“RECOVER is a great initiative, but progress is very slow,” said McCombey, noting that long COVID-19 clinics can take months to see and few people have access to.
“This is such a big initiative,” she said. “If you want to do everything and miss nothing, you move at an unacceptable speed. Many people are suffering and we need to do something.”
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