Health
Cancer victims who died at age 3 inspire the campaign
A 3-year-old cancer victim urged grandmothers to campaign for more research on childhood versions of the disease.
From Rargs, Ayrshire, Rogue Gamma Cleanse died less than a year after he was diagnosed with the brain tumor diffuse endogenous pontine glioma (DIPG) in November 2016.
A woman diagnosed with a brain tumor at age 19 after traveling to Vision Express“data-reactid =” 34 “>read more: A woman diagnosed with a brain tumor at age 19 after traveling to Vision Express
A young family was warned that their child never had this disease, and the only option was radiation therapy to buy him another few months of life.
Since then, we have launched a campaign calling for more funding for childhood cancer with the worst survival rates.. “data-reactid =” 36 “> Logan’s grandmother Fiona Govan, 50, Since then, we have launched a campaign calling for more funding for childhood cancer with the worst survival rates..
Brain tumor researchIn support of Govan’s petition, brain tumors claim to kill more adolescents than any other form of illness, but only receive 1% of the public’s spending on cancer research. “data-reactid = “37 “>Brain tumor researchIn support of Govan’s petition, brain tumors claim to kill more adolescents than other forms of the disease, but only receive 1% of the public’s spending on cancer research.
“We soon learned that it was incurable.”
The Logan family suspected that something was wrong when they started dragging.
“He thought he strained his ankle, but it wasn’t recovering fast enough,” Govan told Yahoo UK.
Sapphire McLean, her daughter and Logan’s mother, took him to the GP twice and finally to A & E.
The young man was referred for a scan of his hips and blood tests.
It was until he met a consultant that the doctor picked up weakness in his right arm.
Pregnant woman suffering from headache diagnosed with incurable brain tumor“data-reactid = “64 “>read more: Pregnant woman suffering from headache diagnosed with incurable brain tumor
An MRI scan of Logan revealed a mass in the brain.
A biopsy at the Royal Children’s Hospital in Glasgow confirmed DIPG approximately 10 days later.
“We quickly learned that it was refractory, no children survived DIPG, and that the only treatment was palliative radiation therapy,” Govan said.
“Surgery in patients with DIPG is rarely an option because of the location of the tumor in the brainstem.
“In all cases, the median survival prognosis is 8 to 12 months. Logan died just 11 months later.”
“One child every two weeks is diagnosed with DIPG”
“There are no parents or grandparents who do not receive the tumors of their children and grandchildren on their behalf,” Govan said.
“Lost a 3-year-old child in this way is obscene.
“Logan was denied the opportunity to be educated, graduate, or have an adult relationship.
“He couldn’t grow up in the dream of becoming something specific, he couldn’t have his own travel adventure, and he got married and had his own child It will never happen.”
Gorban, who lost his grandson, is determined to help allocate more money to childhood cancer, which has a low survival rate.
“I often donated to childhood cancer and hospital charities in the belief that the majority got better,” she said.
“I didn’t realize how terrible it could be, and I never imagined there would be an uncurable cancer.”
Boy’s balance problem turned out to be a sign of cancer“data-reactid = “102 “>read more: Boy’s balance problem turned out to be a sign of cancer
The petition has collected over 100,000 signatures, which is sufficient to consider the discussion in parliament.
“Our mind goes to Fiona and the entire Logan family whose world has been crushed by this cruel cancer,” said Hugh Adams of Brain Oncology.
“We urge everyone to participate and make a difference by signing this petition.
“It is important that we continue to be aware of the shocking lack of investment in the study of this disease.
“Brain tumors kill children and adults under the age of 40 more than any other cancer, but historically only 1% of the public’s spending on cancer research is allocated to this devastating disease ..
“Here in the UK, it’s irresistible to think that every other week, one child is diagnosed with DIPG.”
What is Diffuse Endogenous Bridge Glioma?
DIPG is an aggressive, cancerous brain tumor that usually affects children Between 5 and 9. “data-reactid =” 110 “>DIPG is an aggressive, cancerous brain tumor that usually affects children Between 5 and 9.
Means that the cancer has spread from where it started, Usually reach other areas of the brain or spinal cord. “data-reactid = “111 “> It is classified as Grade 4 which is always growing fast. Means that the cancer has spread from where it started, Usually to other areas of the brain or spinal cord.
About 400 brain tumors are discovered in young people each year In the UK. “data-reactid =” 112 “> DIPG accounts for 10% to 20% of all childhood brain tumors in the UK. About 400 brain tumors are discovered in young people each year In England.
Every year 150-300 children are diagnosed with DIPG.. “data-reactid =” 113 “> In the US, Every year 150-300 children are diagnosed with DIPG..
Symptoms include inward eyes, diplopia, drooping of one side of the face, loss of control of certain body movements, poor coordination, difficulty speaking clearly, weakness, reflexes. Excessive nerves, tickling with a sensation on the soles of the feet, and bending of the thumb up. The latter is common in babies but not in children.
The exact cause of DIPG is unknown, but is associated with genetic variation.
Survival rates are low and most patients live only 8-12 months after diagnosis. About 30% are alive after 1 year, less than 10% in 2 years and less than 1% in 5 years.
Radiation therapy is commonly used to prolong life. The location of the tumor often means that surgery is too dangerous.
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