Health
Family care partners seek better ways to care for caregivers | University of Utah Health
The researchers' work suggests interventions that can help support both patients and caregivers. On the economic side, paid caregiver leave and the ability to work remotely can give caregivers some leeway, Warner said. Financial guidance on working with health insurance can also have a big impact.
Further integration of families into medical care is also needed, including support for transitions of care across different medical settings and conditions, Spiano added.
On the social and emotional side, Warner's research shows that social media and other technologies, such as videoconferencing, can alleviate isolation, provide emotional support, and help people with similar experiences to caregivers. It has been shown to be useful in connecting.
Videoconferencing can also provide direct support to patients, Reinke and Spiano said. Virtual meetings provide access to mental health care for people living in remote areas who may live hours away from the nearest mental health professional. Additionally, telehealth-based methods can reduce some of the stigma associated with seeking help.
Warner added that it's important for caregivers to find ways to talk to friends and family about their challenges. “If people don’t know you’re struggling, they won’t help you,” she says. “It's hard to do that, though. It's really hard to say, 'I'm in trouble and I need help.' ” Again, technology can help make communication a little easier. The app can track specific needs, from gas money to someone to watch the kids for a few hours, so people can make the most of their support network.
Spiano hopes the work she and others are doing with the FCC will pave the way for further research and intervention. “We’re like the bull catchers on the train,” she says. “I hope that the train will develop as many cars ride on it and communicate with each other.''
Reinke similarly hopes these projects will have a far-reaching impact. “We want to change the paradigm of how we provide care to patients and families,” she says. “Not just in our health care system, but across the country.”
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